Bone, 37(3), 338–394 (2005), DOI:10.1016/j.bone.2005.04.026
Fibrous dysplasia of bone (FD) is a congenital, non-heritable skeletal disorder that is associated with multiple skeletal complications, including repeated fractures, limb length discrepancy, and bone pain. The disease-specific impact of FD on quality of life outcomes is unknown. We sought to understand the impact of the scope and extent of the skeletal disease on quality of life in adults and children with FD.
The health-related quality of life was quantified in a population of adults (n